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Osteogenesis Imperfecta Foundation Beams Light of Hope, Distributes Mobility Aids to PLWD

Published

1 month ago

March 23, 2024

Eric

By Eric Elezuo

The main hall of the Saint Micheal, Raphael and Gabriel Catholic Church, Satellite Town, Lagos, and the entire premises were bubbly with humanitarian activities as the Osteogenesis Imperfecta Foundation of Nigeria took it upon itself to reach out to Nigerians living with disabilities with various forms of mobility aids, ranching from crutches, wheelchairs and walking sticks.

The Foundation, which has in the last eight years, since 2016, been saddled with the responsibility of caring for the less privileged and other indigent persons, also conducted free eye tests as well as gave out free medicated eyeglasses for the virtually impaired.

Speaking at the occasion, and tracing the eight years journey of the Foundation, the Founder/CEO, Mrs. Tarela Aghanti, who is also the United Kingdom Ambassador for the National Youth Council of Nigeria, Europe Chapter, noted that she was motivated to embark on the journey, which has translated to pure selflessness and humanitarian, upon discovery that her own son was not only born with the Osteogenesis Imperfecta, but was not properly diagnosed and treated, until she was opportune to take him abroad, where he received better treatment and attention. She noted that it was the need to extend the privilege her son had enjoyed that prompted her to ensure that the processes are replicated back home in Nigeria.

“The motivation was purely humanitarian, and with me having gone through that issue of having a child with Osteogenesis Imperfecta, and with everything that I went through personally for the fact that there was no awareness about it, and I didn’t know what my son had, and there was no proper medication that was recommended for my son. That got to the bottom of my heart. And when I eventually got an opportunity to give my son treatment, I felt there was a need to come back home and give back to humanity. And the reason I felt that need was because I had an opportunity of a lifetime that changed my life and my son’s life.

“My son became a human being again; my family was intact. For me, family is very important, so I felt that need to go back and breach the gap where people with Osteogenesis Imperfecta can be human, and have their own family; be united with their family and be brought up by their own parents.

“I’m so grateful that the Foundation is doing just that, and we are able to achieve even more, bring in OI professionals and specialists from the United States to conduct surgeries for these children,” Mrs Aghanti informed.

She added that humanitarian-giving by the Foundation has been sustained in eight years, and in 2024 at the very event, a total of 314 mobility aids including wheelchairs, crutches and walking canes, were given out to various categories of Osteogenesis Imperfecta patients.

In her remarks at the occasion, the Ambassador of the Foundation in Nigeria, Yeye Adenike Agnes Shobajo, expressed her delight at the selfless efforts of Mrs Aghanti and her team in giving to Nigerians, what otherwise they would not be able to access, describing her as a superwoman, who deserves a national award.

“If there are few individuals in this country, who deserve to be honoured on the national scale, Mrs Aghanti qualifies to be one of them. She deserves a national honour and recognition for her selfless efforts,” Yeye Shobajo said.

The OI Ambassador proceeded to honour Mrs Aghanti by presenting her with a medal honour, thanking her for her efforts as well as pleading with her not rest on her oars in affecting the society positively.

While acknowledging the accolades, Mrs Aghanti called on the government at all levels to come to their assistance in reaching out to more Nigerians as funds required for the assignment are huge.

“The challenges are huge. In the first place, we’ve not had any funding in the Nigerian space. A lot of the funds we have used are from fundraising in the UK or individuals supporting us. But from the Nigerian space, we have not had any help.

“Again, we are in dire need of medical doctors for the children, who need a level of bone juice every six months to keep them going, and it reduces fracture among the children, who are very fragile and allergic to any form of stress. The juice and surgery can correct any deformity in the child. So funding and provision of medical personnel are highly needed.

“We certainly need the government to partner and work with considering more that we are working in the grassroots. We are actually locating families of children that have been abandoned, picking them up and giving them life again,” Aghanti said.

She further advised on the need to identify the Osteogenesis Imperfecta patients on time because the only record of loss recorded in the Foundation are those of children discovered after they have been seriously battered and rendered almost lifeless, noting that early discovery makes therapy and treatment easy and rewarding.

“It is my privilege to let our policy know that Osteogenesis Imperfecta do exist, and there are a lot of Nigerian children suffering from the disease. They need assistance, and more importantly policies that will enable them live their normal lives as human beings,” Aghanti added.

A major highlight of the event was the presentation of the wheelchairs and others to citizens who desired them. Among the first of recipients was young Tishe Ajayi, who presented emotional poems before receiving his wheelchair.

Other members of the public, who have benefited from both the generosity of Osteogenesis Imperfecta Foundation and Mrs. Tarela Aghanti as a person, were also on hand to express their appreciations.

The Osteogenesis Imperfecta Foundation is already eight years in the business of rendering humanitarian assistance to the special needs persons, and according to the Founder, they are not stopping any time soon.

“Our Foundation is in search of a country where the needs of people living with Osteogenesis Imperfecta are understood, respected and affected to fully meet their potential,” Aghanti concluded.

Osteogenesis Imperfecta, also known as Brittle Bone Disease, is a disease that causes weak bones, making it to break easily. The OI can also cause many other diseases such as weak muscles, brittle teeth and hearing loss.

Photos: Ken Ehimen

Featured

I’ll Continue to Take Difficult Decisions Tough times Notwithstanding – Tinubu

Published

16 hours ago

April 26, 2024

Eric

President Bola Tinubu, on Thursday, told the Dutch Prime Minister Mark Rutte at The Hague that his administration is committed to taking difficult decisions for the benefit of the Nigerian people, despite the short-term challenges.

Tinubu emphasized that Nigeria has weathered the worst of storms and that his administration’s actions are guided by a long-term vision for the country’s prosperity.

The president highlighted the vast trade opportunities between Nigeria and the Netherlands, spanning multiple sectors. He also underscored his government’s efforts to enhance the investment climate through ongoing reforms.

Notably, Tinubu emphasized Nigeria’s potential to drive the global clean energy transition with its high-grade lithium deposits, positioning the country as a key player in Europe’s energy future.

Tinubu stressed the importance of balanced and mutually beneficial partnerships, particularly in solid minerals, to create value-added opportunities.

He expressed confidence in the Nigerian people, citing their resilience and determination.

This confidence, he said, empowers him to make tough decisions on their behalf, knowing that these choices will provide Nigerians with the tools they need to succeed in the long term.

The president stated: “I am a determined leader of my people. I have and will continue to take the difficult decisions that will benefit our people, even if there is short-term pain.

“We have gone through the worst of the storms. I am unafraid of the consequences once I know that my actions are in the best long-term interests of all Nigerians.

“Taking a holistic view of the world order, there is a tremendous opportunity between us across trade spheres, but especially in solid minerals, where we have high-grade lithium deposits that we know can power the clean energy future of the world.“There is excellent value-additive opportunity in Nigeria. The world knows us for oil. They will soon know us for greater innovative exploits in other areas.”

The meeting with Prime Minister Rutte at The Catshuis, the official residence in The Hague, underscores the strengthening of diplomatic ties between Nigeria and the Netherlands.

Tinubu’s remarks reaffirm his administration’s commitment to bold leadership and strategic decision-making, even in the face of challenges, to secure a brighter future for Nigeria.

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Rivers: Wike’s Men Reject Reployment, Resign from Fubara’s Govt

Published

2 days ago

April 25, 2024

Eric

Two Rivers State commissioners have resigned their appointments shortly after they were redeployed in a cabinet reshuffle by Governor Siminalayi Fubara. They are the Attorney General and commissioners for Justice, and Finance; Zacchaeus Adangor and Isaac Kamalu respectively.

The duo were affected by a minor cabinet reshuffle made by the governor on April 23.

Kamalu and Adangor are loyalists of Nyesom Wike, the immediate former governor of Rivers and incumbent minister of the federal capital territory (FCT).

Last year, the commissioners resigned from their positions following the political feud between Wike and Fubara.

They were later reinstated after Wike and Fubara signed a peace accord facilitated by President Bola Tinubu.

While Adangor was moved to the ministry of special duties (governor’s office), Kamalu was moved to the ministry of employment generation and economic empowerment.

Kamalu’s resignation came hours after Zacchaeus Adangor, tendered his resignation.

In a letter addressed to Tammy Danagogo, secretary to the state government (SSG), Kamalu said the governor’s “inability to maintain peace” in the state was the reason he quit the cabinet.

The former commissioner said he could not give his best in an atmosphere of rancour.

“Your Excellency would recall that I served under the Administration of His Excellency, Chief Nyesom Ezenwo Wike, CON, GSSRS, POS (now Honorable Minister of the Federal Capital Territory, Abuja) originally as Commissioner for Budget and Economic Planning (2015-2019) and subsequently as Commissioner for Finance with oversight responsibility for the Rivers State Ministry of Budget and Economic Planning (2019 – 2023),” the letter reads.

“The mandates of the respective Ministries were to the best of our abilities (as Ministries) duly carried out and at all times material relevant reforms were embarked upon for improved performance and effective and sustainable service delivery.

“Among several others, we successfully carried out the following; “Initiating and (supporting existing) policy frameworks for enhanced internal revenue generation.

“This with (necessary adjustments made on some of the programs) led to the increase in the internal revenue receipts. This steady rise has presently generated though not the figures erroneously claimed in the media.

“Aggressive improvement in Federation receipts by securing recovery by the state of oilfields that were also the subject of the successful claim against International Oll Companies (IOCs) on production sharing contracts; the recoveries arising from 13% derivation and the demand by the state for adherence to the fiscal provisions in the constitution in support of states by successfully removing from Federation receipts institutions of Government whether state or federal not so recognized by the constitution such as the Police Trust Fund and others thus widening the available receipts for States and the last but not the least our success on the subject of Value Added Tax.

“The reason behind these painstaking efforts was to make available a basket of receipts sufficient to enable the state to deliver good governance through the provision of goods and services.

“It was this idea that informed the continuity and consolidation mantra that was the theme of your election campaign and government thereafter.

“You will respectfully recall that when the climate of discord became unbearable I and other like-minded members of the Executive Council that were appointed by you resigned.

“You thereafter engaged His Excellency, Asiwaju Bola Ahmed Tinubu, GCFR President and Commander-in-Chief of the Armed Forces of the Federal Republic of Nigeria and as Father of the Nation to intervene in the matter.

“In deference to the directive of Mr. President, I and the others were recalled and we all accepted and joined the cabinet again. I expected Sir that with the opportunity provided by Mr.President, every effort will be made to sustain peace.

“Regrettably Your Excellency the peace in Government and governance that we all – citizens and residents of the state desire has remained out of reach despite our consistent efforts and demand for same.

“This has affected our ability to protect and defend the gains that we made these past years.

“In the course of official engagements, I have reiterated the need for this peace and the fact we all are willing and determined to work for this.

“It is very difficult to deliver good governance where there is acrimony and discord. It is not the point of service that is important but the climate. Our present circumstance makes service delivery extremely challenging. I still hold the belief that it is never too late for peace.

“In view of the above, I find it difficult to accept the redeployment. I do not accept it. I reject it and convey to you my immediate resignation as Commissioner and member of the Rivers State Executive Council with effect from the date of this letter.

“While praying that the Good Lord grants us Peace, I thank you for the opportunity and assure you the assurances of my esteemed regards.”

Featured

Tinubu Approves Credit Scheme Takeoff to Facilitate Purchase of Cars, Houses

Published

2 days ago

April 25, 2024

Eric

President Bola Tinubu has approved the takeoff of the first phase of the Consumer Credit Scheme to facilitate the purchase of houses and cars by working Nigerians.

In a statement on Wednesday, presidential spokesman Ajuri Ngelale said the Consumer Credit Scheme will enhance the quality of life citizens by allowing them to “access goods and services upfront, paying responsibly over time”.

“It facilitates crucial purchases, such as homes, vehicles, education, and healthcare, essential for ongoing stability to pursue their aspirations,” the statement added.

“Through responsible repayment, individuals build credit histories, unlocking more opportunities for a better life. Additionally, the increased demand for goods and services stimulates local industry and job creation.

“The President believes every hardworking Nigerian should have access to social mobility, with consumer credit playing a pivotal role in achieving this vision.”

In line with the President’s directive to expand consumer credit access to Nigerians, the Nigerian Consumer Credit Corporation (CREDICORP) has launched a portal for Nigerians to express interest in receiving consumer credit.

“This initiative, in collaboration with financial institutions and cooperatives nationwide, aims to broaden consumer credit availability,” the statement noted, adding that working Nigerians interested in receiving consumer credit can visit CREDICORP’s website to express interest before the deadline date of May 15, 2024.

“The scheme will be rolled out in phases, starting with members of the civil service and cascading to members of the public.”

The CREDICORP’s objectives include: “(1) Strengthening Nigeria’s credit reporting systems, ensuring every economically active citizen has a dependable credit score. This score becomes personal equity they build, facilitating access to consumer credit.

“(2) Offering credit guarantees and wholesale lending to financial institutions dedicated to broadening consumer credit access today.

“(3) Promoting responsible consumer credit as a pathway to an improved quality of life, fostering a cultural shift towards growth and financial responsibility.”